Friday, May 14, 2010

Big E, little e……..

5/14/10…………it sounds like the first line of a Dr. Seuss book. But it’s not! For us it’s all about antigens, antibodies, anemia, titer (concentration of antibodies), neonatalist and in utero transfusions.
Words foreign to our vocabulary until yesterday. Words that trigger the "fearful unknown."

I know this “trust” dance, I’ve done it before---just with different steps. This time it’s not just my dance---but it involves my children and their spouses (also my children) and grandchildren and that is a harder dance for me to learn.

This will not just be a “me and Thee” dance but more of a circle folk-type dance that will include both families, Diltz and Liles. We’re going to have to interlock arms, bow heads and be open to our “Cuer”---a term for a round dance caller. That’s the way one learns a round dance---just following the steps and the turns that come from the “cuer” ---soft though though his voice may be. It’s a step-by-step learning as the “cuer” creates dance sequences---because there are often no clear directions. The “cuer” gives the lead and new instructions when you’re ready for the next level. The “cuer” knows and therefore can define difficulty levels at which their dancers are dancing.

However, as a believer I have found that, regardless of the difficulty, my “trust” dances follow the same pattern, no matter how intricate and unfamiliar the steps. I just have to focus on the D.A.N.C.E.!
Discovering revelation from God’s word ---Romans 12:12 comes to mind that we all might be “joyful in hope, patient in affliction and fervent in prayer.” “rejoicing in hope, (hoping for the best---that Day’s levels remain at 1.8) faithful in affliction (for Day and baby Liles physically & all of us emotionally) and fervent in prayer” (oh how we covet prayers)
Accepting that these physical difficulties for both Day and the baby are out of our control and accepting God’s peace to cover our emotional pain
Noticing God’s hand in the provision of the early lab findings that deal with immunohematology, as well as availability of great medical facilities and doctors in Dallas area
Celebrating God’s faithfulness with Nathan’s early arrival, Noah’s nasal hemangioma where involution occurred on its own so no surgical interventions needed, Caleb’s 34 week delivery and ICU stay which in no way thwarted his mental or physical abilities and the monthly shots that prevented John Parker’s early arrival---also grateful he didn’t “arrive” in the middle of the parking lot, though he certainly cut it close. Remembering His faithfulness in the past helps me garner confidence for this new dance.

Extending hope to family and to others as we all begin this struggle of not knowing, coupled with continuing assessment of this medical situation
1 Cor 10:13, No test or temptation (trial) that comes your way is beyond the course of what others have had to face. All you need to remember is that God will never let you down; he'll never let you be pushed past your limit; he'll always be there to help you come through it. (The Message)
I am praying that we all will be strengthened by the power of His might so that we will have patience and endurance during this hard time.(Colossians 1:11)

He is already there---ready for this “Big E shuffle” or whatever we dub this dance---

He already knows all those words. He knows the steps we need to take. For it is He who “created my (baby Liles) inmost being; you knit me together in my mother's womb.” (Psalm 139:13)